I can't believe that it is six weeks ago that I was told that I would have to wait to see the Neuro-Opthomology Clinic at the Eye and Ear Hospital. Back then I was told by a doctor that 'all treatable diseases have been ruled out, that I had a degenerative eye disease and would go blind and that it didn't matter if I had to wait six weeks or six months nothing could be done to help me'
Back then and hearing this news and then having to wait six weeks to for an appointment it seemed like an eternity.
In the last six weeks I've seen the specialist privately and had some tests. Today I got some results and after seeing the doctors I still don't have a diagnosis or a decision about driving however the doctors are now sure that I have some kind of rare disease of my retina. Apparently these diseases are not treatable however they are 'self limiting'. This means that it is unlikely that the degeneration of my sight will continue.
The tests results to determine if I can drive were 'borderline'. I now have to wait for the Road Traffic Authority Medical Review Board to review the results and make a decision.
The doctor told me today that I will need to be patient as getting a diagnosis may take months and there are many more tests that I need to have.
My next appointment and tests will be in about six weeks however six weeks now doesn't seem that long away.
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